Contents

Executive Summary

CIDAN Executive Committee Members

Phnom Penh Recommendations on Intellectual Disability and Autism

Phnom Penh Recommendations in Khmer

Welcome Speech (Khmer)

Programme

Presentations

Media Coverage in Khmer (Print and Video)

Photos

8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day

Executive Summary

Keynote Speech in Khmer of H.E. Mr. Makara Chan Em, Secretary General, Disability Action Council, Cambodia

Photos

Executive Summary

The National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network (CIDAN) was attended by over 150 participants, including persons with intellectual disabilities and autism, their families, and stakeholders, from 31 March to 1 April 2015 in Phnom Penh, Cambodia. The Workshop was organized by the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) of the Government of Cambodia, the Disability Action Council (DAC) and the Asia-Pacific Development Center on Disability (APCD), in collaboration with the Japan International Cooperation Agency (JICA), the Japan-ASEAN Integration Fund (JAIF), and non-governmental organizations related to intellectual disability and autism in Cambodia.

Aimed at giving opportunities for persons with intellectual disabilities and autism to network and strengthen their collaboration with partners on the national level, the event was the venue for the establishment of CIDAN, the election of the CIDAN Executive Committee, and the drafting of the Phnom Penh Recommendations on Intellectual Disability and Autism, which was presented at the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day celebrations in Phnom Penh on 2 April 2015.

CIDAN Executive Committee Members

Elected NGO Representatives

Name: Mr. Hong Chea

NGO: CCAMH

Position: CIDAN President

Email: chea.hong@caritascambodia.org

Name: Mr. Kong Vichetra

NGO: KPF

Position: Vice President

Email: vichetra.kong@komarpikar.org

Name: Mr. Chan Sarin

NGO: HHC

Position: Vice President

Email: chan.sarin9@gmail.com

Elected Parents Representatives

Name: Ms. Sim Dany

NGO: CAMYOD

Position: CIDAN President

Email: nhorkkimhor@yahoo.com

Name: Mrs. Em Chhorvy

NGO: HAGAR

Position: Vice President

Email: cidan2.cambodia@gmail.com

Name: Mrs. Nhem Leksmey

NGO: DDSP

Position: Vice President

Email: ddsp@camintel.com

Phnom Penh Recommendations on Intellectual Disability and Autism

We, the representatives of persons with intellectual disabilities and autism, their parents, siblings and other family members, governments, caregivers, the private sector and other stakeholders in Cambodia, over 500 persons, gathered in Phnom Penh, Cambodia from 31 March to 2 April 2015 in the “National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network”.

We thank the organizers of the Workshop: the Disability Action Council (DAC) of Cambodia and the Asia-Pacific Development Center on Disability (APCD) in collaboration with the Ministry of Social Affairs, Veterans and Youth Rehabilitation of Cambodia, the Ministry of Education of Cambodia, with support from the Japan International Cooperation Agency (JICA) and the Japan-ASEAN Integration Fund (JAIF) for their support in the successful arrangement of the Workshop.

In agreement with the principles of the United Nations Convention on the Rights of Persons with Disabilities (CRPD), the Incheon Strategy to “Make the Right Real” for Persons with Disabilities in Asia and the Pacific, 2013-2022, the Government of Cambodia has been making various efforts on disability and development in line with the Law on the Protection and the Promotion of the Rights of Persons with Disabilities 2009, and the National Disability Strategic Plan 2014-2018.

In light of 8th World Autism Awareness Day/2nd Cambodian Autism Awareness Day, presided by His Excellency Mr. Sem Sokha, Secretary of State, Ministry of Social Affairs, Veterans and Youth Rehabilitation of Cambodia/Vice President, Disability Action Council of Cambodia, the Workshop makes the following recommendations:

1. The Disability Action Council of Cambodian government to acknowledge the establishment of the Cambodian Intellectual Disability and Autism Network (CIDAN) as a focal of the United Intellectual Disability Network in the Mekong Sub-region and the ASEAN Autism Network;

2. The Cambodian Intellectual Disability and Autism Network (CIDAN) to be part of the planning, implementation and monitoring of laws and policies on disability and development at the national level in partnership with the Government of Cambodia;

3. Partnerships among the Disability Action Council of Cambodian government, CIDAN, APCD, United Intellectual Disability Network in the Mekong Sub-region and the ASEAN Autism Network to be strengthened locally and internationally for an intellectual disability and autism-friendly Cambodian community in a sustainable manner.

Presented and unanimously adopted at the National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network 2 April 2015

Phnom Penh Recommendations in Khmer

Welcome Speech (Khmer)

by H.E. Mr. Makara Chan Em

Secretary General

Disability Action Council (DAC)

Cambodia

Programme

National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network

Cambodia-Japan Cooperation Center, Phnom Penh, Cambodia

31 March-2 April 2015

Day 1: Tuesday, 31 March 2015

7:30-8:30 Registration

8:30-9:30 Item 1: Opening

- Welcome Speech: H.E. Mr. Makara Chan Em (Secretary General, Disability Action Council
Secretariat, Cambodia)

- Welcome Remark: Mr. Ryuhei Sano (General Manager, Asia-Pacific Development Center
on Disability, Thailand)

- Opening Speech: H.E. Mr. Sem Sokha (Secretary of State, Ministry of Social Affairs, Veterans
and Youth Rehabilitation, Cambodia)

- Group Photo

9:30-9:45 Refreshment Break

9:45-10:15 Item 2: Purpose of the Workshop

10:00-12:00 Item 3: Situational Analysis by Self-Advocacy Groups and NGO Representatives

- Self-advocates on Their Life Stories and Situation

- Development of Intellectual Disability and Autism Movement (NGO Presentations)

12:00-13:00 Lunch Break

13:00-14:45 Item 4: Discussion on Cambodian Intellectual Disability and Autism Network

- Agreement

- Constitution

14:45-15:00 Refreshment Break

Programme Continued

15:00-17:00 Item 5: Discussion on Cambodian Intellectual Disability and Autism Network

- Structure of the Network

Day 2: Wednesday, 1 April 2015

7:30-8:00 Registration

8:00-9:00 Presentation from Ministry of Education and Ministry of Social Affairs

9:00-10:30 Item 6: Discussion on Cambodian Intellectual Disability and Autism Network

- Action Plan

10:30-10:45 Refreshment Break

10:45-12:00 Item 6. (Continued) Discussion on Cambodian Intellectual Disability

and Autism Network

- Action Plan

Day 2: Wednesday, 1 April 2015

12:00-13:00 Lunch Break

13:30-15:00 Item 7: Conclusion of Networking

- Network Constitution

- Action Plan

- Identification of Executive Committee Members

15:00-15:15 Refreshment Break

15:15-17:00 Item 8: Adoption of the Outcome Documents

- Phnom Penh Recommendations on Intellectual Disability and Autism

Day 3: Thursday, 2 April 2015

8:30-9:00 Arrival of Honorable Guests

Programme Continued

9:00-10:30 Item 9: World Autism Awareness Day 2015

- Workshop Report: H.E. Makara Chan Em (Secretary General, Disability Action Council
Secretariat, Cambodia)

- Ceremony Remark: Mr. Akiie Ninomiya (Executive Director, Asia-Pacific Development
Center on Disability, Thailand)

Impress of CIDAN Network by Mr. Hong Chea, NGO Representative

- Announcement of Phnom Penh Recommendations on Intellectual Disability and Autism
by Mrs. Em Chhorvy, Parent Vice President

- Keynote Speech: H.E. Mr. Sem Sokha (Secretary of State, Ministry of Social Affairs, Veterans
and Youth Rehabilitation, Cambodia)

- Group Photo

- Traditional Games Conducted by NGOs for AID Group

Presentations

Hands of Hope Community

Slide 1

National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network

Cambodia-Japan Cooperation Center, Phnom Penh, Cambodia, 31 March-2 April 2015

Slide 2

Hands of Hope Community provides professional and compassionate environment for children with special needs such as autism and Down Syndrome to receive the emotional, physical and social support they need as well as the opportunity to participate in most of the regular school activities with other children living in the community.

Slide 3

Children with special needs in Hands of Hope Community target areas are enabled to reach their full potential and have their rights respected by their communities.

It is not easy but it is not difficult if working together.

Slide 4

What is our vision?

Cambodian society where children and youth with intellectual and physical disabilities have their rights respected

Slide 5

What is our vision?

HHC is a Christian organization that promotes and protects the rights of children and youth with intellectual and physical disabilities, empowers families and communities, and engages the government to be more responsive.

Slide 6

Our Work

Image: Cambodia map

Slide 7

Day Care of Love

The place where everyone can come and share

Photos: Group photo of HHC members and community

Slide 8

Home Base Care Program

Photo: Children playing with Lego blocks

Slide 9

Our Management

Identification

1. Who are Autism and ID?

2. Where are they?

3. Why Autism and ID and Challenges?

4. Who can help them?

5. How we can help them?

Slide 10

What is autism? Autism is an intellectual Pervasive Developmental Disorder related to functional movement as preparation and planning and it effects on the sense. It has been occurring at the age of 3 and we see more destination of boys more than girls 4%, half 1% among 166 people.

Slide 11

Children with Autism and ID do not care how much you know, until they know how much you care

Photos: Children with Autism and ID

Slide 12

Challenges 1: Direct Implementation

Social communication: unable to know the feeling or situation, it can be a disturbing or inappropriate feedback, inappropriate behavior when different situations change, or not able to understand in communication with others

Slide 13

Challenges 2

Inflexible Behavior: Hand, physical movement (reversing hand or objects), less or non-playing, less attention or concentration on the same thing

Photos: Children with autism and ID playing focus-centered games

Slide 14

Challenges 3

Communication: Speechless or slow, repeated words or confirmed the same worlds, less or not facial attraction, unexpected words or speak much with confusing

Photos: Children with Autism and ID engaged in outdoor activities

Slide 15

Identification and Implementation

- HHC is not the identify AU/ID but CCAMH does

- HHC working across the sector for collaboration as CCAMH, KPF, CAMYOD, DAC and CCD Thailand

- HHC has staff calls Teacher with Special Need, they get train well with technical expert and experiences

Photos: Teachers with Special needs getting training

Slide 16

Autism and ID Professional (local and international training)

Photos: HHC staff and members in various activities and trainings

Slide 17

Special Class Management in 5 Groups

Photos: Images showing the 5 different special class management

Slide 18

Video

Slide 19

Our Achievements can be found:

- Good collaboration with government and NGO sectors and international NGOs

- Parents of the children participated through working rotation, meeting and training at daycare

- Each child has IEP for progress record

- The child progress can be sent in IEP and others

Photos: Group photos of parents and their children with autism and ID

Slide 20

Government involved

Photos: Images of HHC and government collaboration

Slide 21

Challenges of Implementation

Lack of the collaboration among the NGO sectors

Slide 22

Challenges of Support

Lack of long-term funding and commitments from donors

Slide 23

Lack of Social Support

Government Structure

Slide 24

Our Future Plan

Slide 25

Expectation from this Network

1. CIDAN Alliance

2. Collaborations

3. Commitments

4. Together we can do

5. Trust

Slide 26

No NATO (None Action But Talk Only)

Slide 27

Achievement of Working with Autism

- Occupational therapy

- Dressing (putting on and taking off)

- Showing (understand the function of each materials in the bathroom)

- Mouth hygiene, eating ways

- Writing

- Speech Language Therapy Communication

- Simple pronunciation, short accent with picture or real object

- Follow by schedules

Slide 28

- Balance

- Strengthening muscle

- Social participation

- Nation, internal sport participation

- Art, action, musical playing

- Social event participations

Slide 29

Photo of children with Autism and ID in class

Slide 30

Thanks so much for your attention. Many blessings for everyone!

Contact us: HHC Mr. Chan Sarin, 012 777 042/023 864 291

Our website: www.hhccambodia.org

Developmental Disability Services

Slide 1

Empowering parents of children with developmental disabilities in Cambodia

Presentor: Dr. Hong Chea, Program Manager, Developmental Disability Services

ccamh-admin@caritascambodia.org

Slide 2

Sharing for the day

- Briefly about Caritas-CCAMH

- A movement of the parents

- A movement by the parents

- A movement for the parents

- Challenges and future

Slide 3

Sharing for the day

- Briefly about Caritas-CCAMH

Slide 4

Major milestones

Photos showing the group’s achievements

Slide 5

Four programs

Map showing the different programs in Cambodia

Slide 6

Three services at CCAMH

- Neuropsychiatric problems

- Psychological problems

- Developmental disabilities

Slide 7

Sharing for the day

- A movement of the parents

Slide 8

Why movement of the parents...

- Create understanding on comprehensive development model

- Establish sense of solidarity among the parents

- Provide opportunity for mutual learning

- Deliver services that is family-centered and empowering

- Parent associations as lobby-group to ascertain their children’s rights

Slide 9

Five parent associations at Caritas-CCAMH

- Intellectual disability (2005)

- Down Syndrome (2006)

- Autism (2009)

- Epilepsy (2010)

- Major mental health problem (Psychosis) (2011)

Photos: Down Syndrome PA meet, Autism Awareness Day 2nd April 2014

Slide 10

Activities of the CCAMH parent associations

- Biannual/quarterly meets

- Provide feedback/express service needs

- Psychosocial and development education facilitated by CCAMH team

Photos: Epilepsy PA meet, Autism PA meet

Slide 11

Activities of the CCAMH parent associations

- Commemoration of international/UN Days (Autism awareness, World Purple Day, etc.)

- Contribution to respective parent association, with matching grant from CCAMH

Photos: World Down Syndrome Day, World Purple/Epilepsy Day, 2015

Slide 12

Sharing for the day

- A movement by the parents

Slide 13

Community-based Inclusive Development

- Enhancement of antenatal care to have a healthy baby

- Enhancement of a child’s development early in life by reducing illness, improving cognitive and social and emotional development

- The education of parents and/or caregivers in better parenting, health, and hygiene practices

(World Bank recommendation for ECD program)

Slide 14

Promoting inclusive development and disability prevention

Photos: Comprehensive maternal care, Micronutrient (iodine) deficiency prevention

Slide 15

Inclusive play can be fun as well!

Photos: All the children join Srey Sath and her mother; Srey Sath felt included

Slide 16

Sharing for the day

- A movement for the parents

Slide 17

One-stop service for children with DD

Photos: Specialized care (PT, OT, ST, etc.), provided by multi-disciplinary team at CCAMH, including parent training

Slide 18

Competence building for parent association leaders

Photos: Head of Autism Parent Association, World Autism Awareness Day, 2010; Parents’ exposure visit to Caritas-SETI, Egypt, 2012

Slide 19

Key challenges...

- Prevailing cultural belief and stigma issues

- Unrealistic expectation of the medical cure and lack of understanding of social and empowerment model

- Perception as passive recipient of services and dependency on agencies like Caritas-CCAMH

- Resource and time-poor parents

- Lack of competence and confidence to move the federation forward

Slide 20

Future...

- The five parent associations of Caritas-CCAMH to form a federation

- The Caritas-CCAMH parent-federation to be linked with national level network

- Parent groups to produce development-educational materials and market it

Slide 21

Future...

- Parent-managed integrated educational facilities with guidance and support of CCAMH

- Research on stress management and relaxation training (SMART) program for parents with ChWD

- Operational research on integrating developmental disability services with the government PHC in one district as a pilot program

Slide 22

Thank you!

Slide 23

Video: CCAMH in the eyes of a mother

Cambodia Intellectual Disability and Autism Network

Slide 1

Congratulations

National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network

31 March-2 April 2015

CJCC, Phnom Penh, Cambodia

Slide 2

There are an estimated 630,000 disabled people in Cambodia. More than 50% of those are under 20 years of age.

Slide 3

How will KPF work?

Vision

For children and youth with moderate to severe disabilities to gain a quality of life and provide them with dignity and recognition of being deserving of equal rights within society.

Mission

To provide quality holistic support, to ensure that policies and services are implemented to address the needs of children and youth with severe and multiple disabilities.

Slide 4

KPF’s Location

Map of Cambodia showing KPF’s locations

Slide 5

Children in Communities Program

- Community Day Centers Projects

- Home Based Support, Sub-Centre and Home Visit Project

- Special Services for Children with Disabilities

- Inclusive Education

Slide 6

Empowering Parents

Photos showing Building Family Capacity, Advocacy, Support, Income Generation

Slide 7

Photos of parent capacity building activities

Slide 8

Photos of ongoing advocacy to promote the rights of children with disabilities

Slide 9

Background

Workshop on Development of Self-help Group Network on Intellectual Disability in Cambodia was co-organized by Disability Action Council (DAC) of Cambodia and the Komar Pikar Foundation (KPF) in collaboration with the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) of Cambodia, the Asia-Pacific Development Center on Disability (APCD) and the Japan International Cooperation Agency (JICA) in Phnom Penh from November 15-17, 2011. Dao Ruang Group from Thailand and Unity Group from Myanmar joined hands to share their knowledge to set up a group in Phnom Penh, Cambodia. Finally, ROSE Cambodia was established on November 17, 2011 as the first advocate group for persons with intellectual impairment in Cambodia.

Slide 10

Vision

Want to see people with intellectual disability have opportunity to involve activities in society to equal right of all people and living with better life.

Slide 11

Objectives

- To play the role model of working in group among persons with intellectual disabilities

- To advocate for disability issues including in government programs and plans

- To promote independence and self-reliance among young people with intellectual disabilities

- Working with the other people for social change (sport, art and event)

- Capacity development on the skill

- Develop networking/communication (regional in Asia and on the world)

Slide 12

Photo of the Rose ID Group members of Cambodia

Slide 13

Photo of group members of youth with intellectual disabilities and their families

Slide 14

Photo detailing the Rose organizational structure

Slide 15

Activities and Achievements

Photos of monthly meetings of ROSE members, family members and supporters

Slide 16

Photos of Awareness Events

Slide 17

Photos of Social Activities and Sport

Slide 18

Networking

Photos of Exchange Programs between the ROSE ID Group-Cambodia with other partners.

Slide 19

Photos of internship activities

Slide 20

The role of parents

- To support their children at home

- To help sending children to join in the meetings, trainings/workshops

- To regularly involve with ROSE group activities

- To contribute ideas, time, labor and materials for the group

Slide 21

The role of supporters

- To provide guidance for ROSE activities

- To provide technical support

- To link ROSE group with other Groups in regional and international platforms

- To facilitate ROSE activities

- To assist in fundraising for ROSE activities

- To promote ROSE activities in national and international events

Slide 22

Challenges

- Limited fund for activities and livelihood

- Supporters have limited knowledge and experience in self-advocacy

- Self-advocate members have limited life skills

- Self-advocate members still need more support

Slide 23

Disability Inclusion in the Development Plans for Poverty Reduction

Slide 24

Buddha told us that everyone has property since birth as follows:

1. Face - You can give your smile to others.

2. Mouth - You can speak inspirational words to others.

3. Face - You can see others in a good way.

4. Red - You can be open minded with others.

5. Brown - You can use your body to help others.

Cambodia Intellectual Disability and Autism Network presentation in Khmer

Autistics_Rabbit School presentation in Khmer

Ministry of Social Affairs, Veterans and Youth Rehabilitation presentation in Khmer

Disability Action Council Strategic Plan 2014

Media Coverage in Khmer (Print and Video)

Photos

1. Over 150 participants including persons with intellectual disabilities and autism, their family and stakeholders

2. Opening ceremony by organizers

3. Agreement to establish Cambodian Intellectual Disability and Autism Network (CIDAN)

4. Newly elected CIDAN Executive Members

5. Phnom Penh Recommendations on Intellectual Disability and Autism adopted by participants

6. Feedback from a Workshop participant

8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day

Organized by

Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY)

Disability Action Council (DAC)

Asia-Pacific Development Center on Disability (APCD)

In collaboration with

Japan International Cooperation Agency (JICA)

Japan-ASEAN Integration Fund (JAIF)

This report is available in a text format for persons with visual impairments and blind persons free of charge. Please contact info@apcdfoundation.org for further details.

Executive Summary

The Government of Cambodia through the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) and the Disability Action Council (DAC) led the celebration of the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day on 2 April 2015 in Phnom Penh. Also present to lend their support to the event were the Asia-Pacific Development Center on Disability (APCD, the Japan International Cooperation Agency (JICA), the Japan-ASEAN Integration Fund (JAIF) and the ASEAN Autism Network (AAN).

Attended by over 550 participants, the event brought together different local and international stakeholders on intellectual disability and autism, which further strengthened collaboration and networking, and renewed the commitment of concerned parties on the issue.

Keynote Speech in Khmer of H.E. Mr. Makara Chan Em, Secretary General, Disability Action Council, Cambodia

Photos

1. Group photo of participants and organizers

2. Phnom Penh Recommendations on Intellectual Disability and Autism read by Vice Chairperson of the Cambodian Intellectual Disability and Autism Network (CIDAN)

3. Speech by Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY)

4. Full house at the Autism Awareness Day

5. Over 550 participants celebrated the Autism Awareness Day

6. Recreation activities for persons with autism, their families and stakeholders

CD Cover of the National Workshop for the Establishment of Cambodian Intellectual Disability and Autism Network (31 March-1 April 2015) and the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day (2 April 2015)

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Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY)

Disability Action Council (DAC)

Asia-Pacific Development Center on Disability (APCD)

Japan International Cooperation Agency (JICA)

Japan-ASEAN Integration Fund (JAIF)

Asia-Pacific Develoment Center on Disability (APCD)

255 Rajvithi Rd., Rajthevi, Bangkok 10400 Thailand

Tel: +66-(0)-2354-7505

Fax: +66-(0)-2354-7507

Email: info@apcdfoundation.org

Website: www.apcdfoundation.org