Search # to go to page number Search * to go to sections * National Workshop for the Establishment of Cambodian Intellectual Disability and Autism Network (CIDAN) 31 March-1 April 2015 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day 2 April 2015 Cambodia-Japan Cooperation Center (CJCC) Phnom Penh, Cambodia Logos: Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) Disability Action Council (DAC) Asia-Pacific Development Center on Disability (APCD) Japan International Cooperation Agency (JICA) Japan-ASEAN Integration Fund (JAIF) Flag: Cambodia * National Workshop for the Establishment of Cambodian Intellectual Disability and Autism Network (CIDAN) Organized by MoSVY DAC APCD JICA JAIF 31 March-1 April 2015 Cambodia-Japan Cooperation Center (CJCC) Phnom Penh, Cambodia This report is available in a text format for persons with visual impairments and blind persons free of charge. Please contact info@apcdfoundation.org for further details. #Page 3 *Table of Contents Executive Summary 4 CIDAN Executive Committee Members 5 Phnom Penh Recommendation (English) 6 Phnom Penh Recommendation (Khmer) 7 Welcome Speech (Khmer) 8 Programme 13 Presentations 16 Media Coverage 54 Photos 56 8th World Autism Awareness Day/2nd Cambodian Autism Awareness Day 58 Executive Summary 59 Keynote Speech (Khmer) 60 Photos 65 #Page 4 *Executive Summary The National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network (CIDAN) was attended by over 150 participants, including persons with intellectual disabilities and autism, their families, and stakeholders, from 31 March to 1 April 2015 in Phnom Penh, Cambodia. The Workshop was organized by the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) of the Government of Cambodia, the Disability Action Council (DAC) and the Asia-Pacific Development Center on Disability (APCD), in collaboration with the Japan International Cooperation Agency (JICA), the Japan-ASEAN Integration Fund (JAIF), and non-governmental organizations related to intellectual disability and autism in Cambodia. Aimed at giving opportunities for persons with intellectual disabilities and autism to network and strengthen their collaboration with partners on the national level, the event was the venue for the establishment of CIDAN, the election of the CIDAN Executive Committee, and the drafting of the Phnom Penh Recommendations on Intellectual Disability and Autism, which was presented at the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day celebrations in Phnom Penh on 2 April 2015. #Page 5 *CIDAN Executive Committee Members Elected NGO Representatives Name: Mr. Hong Chea NGO: CCAMH Position: CIDAN President Email: chea.hong@caritascambodia.org Name: Mr. Kong Vichetra NGO: KPF Position: Vice President Email: vichetra.kong@komarpikar.org Name: Mr. Chan Sarin NGO: HHC Position: Vice President Email: chan.sarin9@gmail.com Elected Parents Representatives Name: Ms. Sim Dany NGO: CAMYOD Position: CIDAN President Email: nhorkkimhor@yahoo.com Name: Mrs. Em Chhorvy NGO: HAGAR Position: Vice President Email: cidan2.cambodia@gmail.com Name: Mrs. Nhem Leksmey NGO: DDSP Position: Vice President Email: ddsp@camintel.com #Page 6 *Phnom Penh Recommendations on Intellectual Disability and Autism We, the representatives of persons with intellectual disabilities and autism, their parents, siblings and other family members, governments, caregivers, the private sector and other stakeholders in Cambodia, over 500 persons, gathered in Phnom Penh, Cambodia from 31 March to 2 April 2015 in the "National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network". We thank the organizers of the Workshop: the Disability Action Council (DAC) of Cambodia and the Asia-Pacific Development Center on Disability (APCD) in collaboration with the Ministry of Social Affairs, Veterans and Youth Rehabilitation of Cambodia, the Ministry of Education of Cambodia, with support from the Japan International Cooperation Agency (JICA) and the Japan-ASEAN Integration Fund (JAIF) for their support in the successful arrangement of the Workshop. In agreement with the principles of the United Nations Convention on the Rights of Persons with Disabilities (CRPD), the Incheon Strategy to "Make the Right Real" for Persons with Disabilities in Asia and the Pacific, 2013-2022, the Government of Cambodia has been making various efforts on disability and development in line with the Law on the Protection and the Promotion of the Rights of Persons with Disabilities 2009, and the National Disability Strategic Plan 2014-2018. In light of 8th World Autism Awareness Day/2nd Cambodian Autism Awareness Day, presided by His Excellency Mr. Sem Sokha, Secretary of State, Ministry of Social Affairs, Veterans and Youth Rehabilitation of Cambodia/Vice President, Disability Action Council of Cambodia, the Workshop makes the following recommendations: 1. The Disability Action Council of Cambodian government to acknowledge the establishment of the Cambodian Intellectual Disability and Autism Network (CIDAN) as a focal of the United Intellectual Disability Network in the Mekong Sub-region and the ASEAN Autism Network; 2. The Cambodian Intellectual Disability and Autism Network (CIDAN) to be part of the planning, implementation and monitoring of laws and policies on disability and development at the national level in partnership with the Government of Cambodia; 3. Partnerships among the Disability Action Council of Cambodian government, CIDAN, APCD, United Intellectual Disability Network in the Mekong Sub-region and the ASEAN Autism Network to be strengthened locally and internationally for an intellectual disability and autism-friendly Cambodian community in a sustainable manner. Presented and unanimously adopted at the National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network 2 April 2015 #Page 7 *Phnom Penh Recommendations in Khmer #Page 8 *Welcome Speech (Khmer) by H.E. Mr. Makara Chan Em Secretary General Disability Action Council (DAC) Cambodia #Page 13 *Programme National Workshop for the Establishment of the Cambodian Intellectual Disability and Autism Network Cambodia-Japan Cooperation Center, Phnom Penh, Cambodia 31 March-2 April 2015 Day 1: Tuesday, 31 March 2015 7:30-8:30 Registration 8:30-9:30 Item 1: Opening - Welcome Speech: H.E. Mr. Makara Chan Em (Secretary General, Disability Action Council Secretariat, Cambodia) - Welcome Remark: Mr. Ryuhei Sano (General Manager, Asia-Pacific Development Center on Disability, Thailand) - Opening Speech: H.E. Mr. Sem Sokha (Secretary of State, Ministry of Social Affairs, Veterans and Youth Rehabilitation, Cambodia) - Group Photo 9:30-9:45 Refreshment Break 9:45-10:15 Item 2: Purpose of the Workshop 10:00-12:00 Item 3: Situational Analysis by Self-Advocacy Groups and NGO Representatives - Self-advocates on Their Life Stories and Situation - Development of Intellectual Disability and Autism Movement (NGO Presentations) 12:00-13:00 Lunch Break 13:00-14:45 Item 4: Discussion on Cambodian Intellectual Disability and Autism Network - Agreement - Constitution 14:45-15:00 Refreshment Break #Page 4 *Programme Continued 15:00-17:00 Item 5: Discussion on Cambodian Intellectual Disability and Autism Network - Structure of the Network Day 2: Wednesday, 1 April 2015 7:30-8:00 Registration 8:00-9:00 Presentation from Ministry of Education and Ministry of Social Affairs 9:00-10:30 Item 6: Discussion on Cambodian Intellectual Disability and Autism Network - Action Plan 10:30-10:45 Refreshment Break 10:45-12:00 Item 6. (Continued) Discussion on Cambodian Intellectual Disability and Autism Network - Action Plan Day 2: Wednesday, 1 April 2015 12:00-13:00 Lunch Break 13:30-15:00 Item 7: Conclusion of Networking - Network Constitution - Action Plan - Identification of Executive Committee Members 15:00-15:15 Refreshment Break 15:15-17:00 Item 8: Adoption of the Outcome Documents - Phnom Penh Recommendations on Intellectual Disability and Autism Day 3: Thursday, 2 April 2015 8:30-9:00 Arrival of Honorable Guests #Page 15 *Programme Continued 9:00-10:30 Item 9: World Autism Awareness Day 2015 - Workshop Report: H.E. Makara Chan Em (Secretary General, Disability Action Council Secretariat, Cambodia) - Ceremony Remark: Mr. Akiie Ninomiya (Executive Director, Asia-Pacific Development Center on Disability, Thailand) Impress of CIDAN Network by Mr. Hong Chea, NGO Representative - Announcement of Phnom Penh Recommendations on Intellectual Disability and Autism by Mrs. Em Chhorvy, Parent Vice President - Keynote Speech: H.E. Mr. Sem Sokha (Secretary of State, Ministry of Social Affairs, Veterans and Youth Rehabilitation, Cambodia) - Group Photo - Traditional Games Conducted by NGOs for AID Group #Page 16 *Presentations #Page 17 *Hands of Hope Community Slide 1 National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network Cambodia-Japan Cooperation Center, Phnom Penh, Cambodia, 31 March-2 April 2015 Slide 2 Hands of Hope Community provides professional and compassionate environment for children with special needs such as autism and Down Syndrome to receive the emotional, physical and social support they need as well as the opportunity to participate in most of the regular school activities with other children living in the community. Slide 3 Children with special needs in Hands of Hope Community target areas are enabled to reach their full potential and have their rights respected by their communities. It is not easy but it is not difficult if working together. Slide 4 What is our vision? Cambodian society where children and youth with intellectual and physical disabilities have their rights respected Slide 5 What is our vision? HHC is a Christian organization that promotes and protects the rights of children and youth with intellectual and physical disabilities, empowers families and communities, and engages the government to be more responsive. Slide 6 Our Work Image: Cambodia map #Page 18 *Continuation Slide 7 Day Care of Love The place where everyone can come and share Photos: Group photo of HHC members and community Slide 8 Home Base Care Program Photo: Children playing with Lego blocks Slide 9 Our Management Identification 1. Who are Autism and ID? 2. Where are they? 3. Why Autism and ID and Challenges? 4. Who can help them? 5. How we can help them? Slide 10 What is autism? Autism is an intellectual Pervasive Developmental Disorder related to functional movement as preparation and planning and it effects on the sense. It has been occurring at the age of 3 and we see more destination of boys more than girls 4%, half 1% among 166 people. Slide 11 Children with Autism and ID do not care how much you know, until they know how much you care Photos: Children with Autism and ID Slide 12 Challenges 1: Direct Implementation Social communication: unable to know the feeling or situation, it can be a disturbing or inappropriate feedback, inappropriate behavior when different situations change, or not able to understand in communication with others #Page 19 *Continuation Slide 13 Challenges 2 Inflexible Behavior: Hand, physical movement (reversing hand or objects), less or non-playing, less attention or concentration on the same thing Photos: Children with autism and ID playing focus-centered games Slide 14 Challenges 3 Communication: Speechless or slow, repeated words or confirmed the same worlds, less or not facial attraction, unexpected words or speak much with confusing Photos: Children with Autism and ID engaged in outdoor activities Slide 15 Identification and Implementation - HHC is not the identify AU/ID but CCAMH does - HHC working across the sector for collaboration as CCAMH, KPF, CAMYOD, DAC and CCD Thailand - HHC has staff calls Teacher with Special Need, they get train well with technical expert and experiences Photos: Teachers with Special needs getting training Slide 16 Autism and ID Professional (local and international training) Photos: HHC staff and members in various activities and trainings Slide 17 Special Class Management in 5 Groups Photos: Images showing the 5 different special class management Slide 18 Video #Page 20 *Continuation Slide 19 Our Achievements can be found: - Good collaboration with government and NGO sectors and international NGOs - Parents of the children participated through working rotation, meeting and training at daycare - Each child has IEP for progress record - The child progress can be sent in IEP and others Photos: Group photos of parents and their children with autism and ID Slide 20 Government involved Photos: Images of HHC and government collaboration Slide 21 Challenges of Implementation Lack of the collaboration among the NGO sectors Slide 22 Challenges of Support Lack of long-term funding and commitments from donors Slide 23 Lack of Social Support Government Structure Slide 24 Our Future Plan #Page 21 *Continuation Slide 25 Expectation from this Network 1. CIDAN Alliance 2. Collaborations 3. Commitments 4. Together we can do 5. Trust Slide 26 No NATO (None Action But Talk Only) Slide 27 Achievement of Working with Autism - Occupational therapy - Dressing (putting on and taking off) - Showing (understand the function of each materials in the bathroom) - Mouth hygiene, eating ways - Writing - Speech Language Therapy Communication - Simple pronunciation, short accent with picture or real object - Follow by schedules Slide 28 - Balance - Strengthening muscle - Social participation - Nation, internal sport participation - Art, action, musical playing - Social event participations Slide 29 Photo of children with Autism and ID in class Slide 30 Thanks so much for your attention. Many blessings for everyone! Contact us: HHC Mr. Chan Sarin, 012 777 042/023 864 291 Our website: www.hhccambodia.org #Page 22 *Developmental Disability Services Slide 1 Empowering parents of children with developmental disabilities in Cambodia Presentor: Dr. Hong Chea, Program Manager, Developmental Disability Services ccamh-admin@caritascambodia.org Slide 2 Sharing for the day - Briefly about Caritas-CCAMH - A movement of the parents - A movement by the parents - A movement for the parents - Challenges and future Slide 3 Sharing for the day - Briefly about Caritas-CCAMH Slide 4 Major milestones Photos showing the group's achievements Slide 5 Four programs Map showing the different programs in Cambodia Slide 6 Three services at CCAMH - Neuropsychiatric problems - Psychological problems - Developmental disabilities #Page 23 *Continuation Slide 7 Sharing for the day - A movement of the parents Slide 8 Why movement of the parents... - Create understanding on comprehensive development model - Establish sense of solidarity among the parents - Provide opportunity for mutual learning - Deliver services that is family-centered and empowering - Parent associations as lobby-group to ascertain their children's rights Slide 9 Five parent associations at Caritas-CCAMH - Intellectual disability (2005) - Down Syndrome (2006) - Autism (2009) - Epilepsy (2010) - Major mental health problem (Psychosis) (2011) Photos: Down Syndrome PA meet, Autism Awareness Day 2nd April 2014 Slide 10 Activities of the CCAMH parent associations - Biannual/quarterly meets - Provide feedback/express service needs - Psychosocial and development education facilitated by CCAMH team Photos: Epilepsy PA meet, Autism PA meet Slide 11 Activities of the CCAMH parent associations - Commemoration of international/UN Days (Autism awareness, World Purple Day, etc.) - Contribution to respective parent association, with matching grant from CCAMH Photos: World Down Syndrome Day, World Purple/Epilepsy Day, 2015 Slide 12 Sharing for the day - A movement by the parents #Page 24 *Continuation Slide 13 Community-based Inclusive Development - Enhancement of antenatal care to have a healthy baby - Enhancement of a child's development early in life by reducing illness, improving cognitive and social and emotional development - The education of parents and/or caregivers in better parenting, health, and hygiene practices (World Bank recommendation for ECD program) Slide 14 Promoting inclusive development and disability prevention Photos: Comprehensive maternal care, Micronutrient (iodine) deficiency prevention Slide 15 Inclusive play can be fun as well! Photos: All the children join Srey Sath and her mother; Srey Sath felt included Slide 16 Sharing for the day - A movement for the parents Slide 17 One-stop service for children with DD Photos: Specialized care (PT, OT, ST, etc.), provided by multi-disciplinary team at CCAMH, including parent training Slide 18 Competence building for parent association leaders Photos: Head of Autism Parent Association, World Autism Awareness Day, 2010; Parents' exposure visit to Caritas-SETI, Egypt, 2012 #Page 25 *Continuation Slide 19 Key challenges... - Prevailing cultural belief and stigma issues - Unrealistic expectation of the medical cure and lack of understanding of social and empowerment model - Perception as passive recipient of services and dependency on agencies like Caritas-CCAMH - Resource and time-poor parents - Lack of competence and confidence to move the federation forward Slide 20 Future... - The five parent associations of Caritas-CCAMH to form a federation - The Caritas-CCAMH parent-federation to be linked with national level network - Parent groups to produce development-educational materials and market it Slide 21 Future... - Parent-managed integrated educational facilities with guidance and support of CCAMH - Research on stress management and relaxation training (SMART) program for parents with ChWD - Operational research on integrating developmental disability services with the government PHC in one district as a pilot program Slide 22 Thank you! Slide 23 Video: CCAMH in the eyes of a mother #Page 26 *Cambodia Intellectual Disability and Autism Network Slide 1 Congratulations National Workshop for the Establishment of The Cambodian Intellectual Disability and Autism Network 31 March-2 April 2015 CJCC, Phnom Penh, Cambodia Slide 2 There are an estimated 630,000 disabled people in Cambodia. More than 50% of those are under 20 years of age. Slide 3 How will KPF work? Vision For children and youth with moderate to severe disabilities to gain a quality of life and provide them with dignity and recognition of being deserving of equal rights within society. Mission To provide quality holistic support, to ensure that policies and services are implemented to address the needs of children and youth with severe and multiple disabilities. Slide 4 KPF's Location Map of Cambodia showing KPF's locations Slide 5 Children in Communities Program - Community Day Centers Projects - Home Based Support, Sub-Centre and Home Visit Project - Special Services for Children with Disabilities - Inclusive Education Slide 6 Empowering Parents Photos showing Building Family Capacity, Advocacy, Support, Income Generation #Page 27 Slide 7 Photos of parent capacity building activities Slide 8 Photos of ongoing advocacy to promote the rights of children with disabilities Slide 9 Background Workshop on Development of Self-help Group Network on Intellectual Disability in Cambodia was co-organized by Disability Action Council (DAC) of Cambodia and the Komar Pikar Foundation (KPF) in collaboration with the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) of Cambodia, the Asia-Pacific Development Center on Disability (APCD) and the Japan International Cooperation Agency (JICA) in Phnom Penh from November 15-17, 2011. Dao Ruang Group from Thailand and Unity Group from Myanmar joined hands to share their knowledge to set up a group in Phnom Penh, Cambodia. Finally, ROSE Cambodia was established on November 17, 2011 as the first advocate group for persons with intellectual impairment in Cambodia. Slide 10 Vision Want to see people with intellectual disability have opportunity to involve activities in society to equal right of all people and living with better life. Slide 11 Objectives - To play the role model of working in group among persons with intellectual disabilities - To advocate for disability issues including in government programs and plans - To promote independence and self-reliance among young people with intellectual disabilities - Working with the other people for social change (sport, art and event) - Capacity development on the skill - Develop networking/communication (regional in Asia and on the world) Slide 12 Photo of the Rose ID Group members of Cambodia #Page 28 Slide 13 Photo of group members of youth with intellectual disabilities and their families Slide 14 Photo detailing the Rose organizational structure Slide 15 Activities and Achievements Photos of monthly meetings of ROSE members, family members and supporters Slide 16 Photos of Awareness Events Slide 17 Photos of Social Activities and Sport Slide 18 Networking Photos of Exchange Programs between the ROSE ID Group-Cambodia with other partners. #Page 29 Slide 19 Photos of internship activities Slide 20 The role of parents - To support their children at home - To help sending children to join in the meetings, trainings/workshops - To regularly involve with ROSE group activities - To contribute ideas, time, labor and materials for the group Slide 21 The role of supporters - To provide guidance for ROSE activities - To provide technical support - To link ROSE group with other Groups in regional and international platforms - To facilitate ROSE activities - To assist in fundraising for ROSE activities - To promote ROSE activities in national and international events Slide 22 Challenges - Limited fund for activities and livelihood - Supporters have limited knowledge and experience in self-advocacy - Self-advocate members have limited life skills - Self-advocate members still need more support Slide 23 Disability Inclusion in the Development Plans for Poverty Reduction Slide 24 Buddha told us that everyone has property since birth as follows: 1. Face - You can give your smile to others. 2. Mouth - You can speak inspirational words to others. 3. Face - You can see others in a good way. 4. Red - You can be open minded with others. 5. Brown - You can use your body to help others. #Page 30 *Cambodia Intellectual Disability and Autism Network presentation in Khmer #Page 37 *Autistics_Rabbit School presentation in Khmer #Page 44 *Ministry of Social Affairs, Veterans and Youth Rehabilitation presentation in Khmer #Page 46 *Disability Action Council Strategic Plan 2014 #Page 54 *Media Coverage in Khmer (Print and Video) #Page 56 *Photos 1. Over 150 participants including persons with intellectual disabilities and autism, their family and stakeholders 2. Opening ceremony by organizers 3. Agreement to establish Cambodian Intellectual Disability and Autism Network (CIDAN) #Page 57 *Photos (Continued) 4. Newly elected CIDAN Executive Members 5. Phnom Penh Recommendations on Intellectual Disability and Autism adopted by participants 6. Feedback from a Workshop participant #Page 58 *8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day Organized by Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) Disability Action Council (DAC) Asia-Pacific Development Center on Disability (APCD) In collaboration with Japan International Cooperation Agency (JICA) Japan-ASEAN Integration Fund (JAIF) This report is available in a text format for persons with visual impairments and blind persons free of charge. Please contact info@apcdfoundation.org for further details. #Page 59 *Executive Summary The Government of Cambodia through the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) and the Disability Action Council (DAC) led the celebration of the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day on 2 April 2015 in Phnom Penh. Also present to lend their support to the event were the Asia-Pacific Development Center on Disability (APCD, the Japan International Cooperation Agency (JICA), the Japan-ASEAN Integration Fund (JAIF) and the ASEAN Autism Network (AAN). Attended by over 550 participants, the event brought together different local and international stakeholders on intellectual disability and autism, which further strengthened collaboration and networking, and renewed the commitment of concerned parties on the issue. #Page 60 Keynote Speech in Khmer of H.E. Mr. Makara Chan Em, Secretary General, Disability Action Council, Cambodia #Page 65 *Photos 1. Group photo of participants and organizers 2. Phnom Penh Recommendations on Intellectual Disability and Autism read by Vice Chairperson of the Cambodian Intellectual Disability and Autism Network (CIDAN) 3. Speech by Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) #Page 66 *Photos (Continued) 4. Full house at the Autism Awareness Day 5. Over 550 participants celebrated the Autism Awareness Day 6. Recreation activities for persons with autism, their families and stakeholders #Page 67 CD Cover of the National Workshop for the Establishment of Cambodian Intellectual Disability and Autism Network (31 March-1 April 2015) and the 8th World Autism Awareness Day and 2nd Cambodian Autism Awareness Day (2 April 2015) #68 * Accessible for Persons with disAbilities Logos: Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY) Disability Action Council (DAC) Asia-Pacific Development Center on Disability (APCD) Japan International Cooperation Agency (JICA) Japan-ASEAN Integration Fund (JAIF) Asia-Pacific Develoment Center on Disability (APCD) 255 Rajvithi Rd., Rajthevi, Bangkok 10400 Thailand Tel: +66-(0)-2354-7505 Fax: +66-(0)-2354-7507 Email: info@apcdfoundation.org Website: www.apcdfoundation.org